The reality of caring for a parent who is gripped by the nightmare that is dementia
Breakfast was once eaten enthusiastically. Mum declared everything delicious, especially the marmalade she ate every day, but professed never to have eaten in her life. Near the end breakfast was a miserable exercise in spoon-feeding. Using the telly as distraction I might force another mouthful in.
Can you prevent dementia? Here’s what to try
Dementia, I discovered, isn’t just common — the UK’s biggest killer for a second year running — and it’s about more than lost memories. It stole Mum’s bearings so she couldn’t orientate herself (“Where am I?”), her family (“Who are you?”), her mobility (“What do I do with my feet?” when I urged her to walk) and, in the end, it stole her.
The Irish Times: Dementia: At lunchtime, my Mum knew I was her daughter. By evening, nothing
Sometimes dementia is a loaded gun; you’re going to get the single bullet in a chamber anyway, whatever you do: Russian Roulette. Sometimes it isn’t. The only thing that I know for certain now is that it is not inevitable with age.
Irish Independent: ‘The day my mother forgot who I was’ – how Alzheimer’s changed my mum and me
People asked me afterwards, a little incredulously: “Was it really so sudden?” Yes. One day, late in 2019, between lunch and tea, my mother forgot me. I sat across a table from her at one meal and she was entirely confident who I was. That evening: “Tell me”, she asked, “When did we first meet?”
New Scientist: A fresh understanding of OCD is opening routes to new treatments
OCD is complex and commonly misunderstood, with a limited number of treatment options. But in recent years, the mechanisms in the brain and body that drive it are finally being pinned down, revealing an elaborate picture involving genetics, various brain networks, the immune system and even the bacteria in our gut. In turn, this growing understanding is opening up new possibilities of tackling this life-sabotaging condition.
The Times: Me and my mother: the most moving dementia story you’ll read
The evening my mother forgot who I was — who I am — was just like the one that had come before, and the one before that. Weeks of evenings all alike. I puzzled about that later. Why that evening? Why so sudden? So that at lunchtime she knew I was her daughter and by nightfall she didn’t. Six hours later. That’s all it took.
How to prevent dementia: does this Amazonian tribe hold the key? It has an 80% lower incidence than in the West
The Tsimané are an indigenous people from the Bolivian Amazon in South America. You have probably never heard of them. I had not. I had to look up how to pronounce Tsimané: chee-mah-nay.
And yet this small group is extraordinary. A few years ago, scientists studied them to understand their exceptional heart health: 85 per cent had almost no evidence of the calcification of the arteries that is the marker for atherosclerosis. Even those who did have some had very little.
I asked my mother’s neurologist what caused her stroke. ‘Depression,’ he said
Depression, says Professor Craig Ritchie, the chief executive and founder of Scottish Brain Sciences, “may well be an upstream trigger for physical health”. It might even have been a significant risk factor for the Alzheimer’s disease that my mother suffered from in the last six years of her life.
People may present with depression later in life as a consequence of dementia but increasingly, research points to depression in early and midlife as a risk factor for developing dementia.
How dental health may impact brain health; experts describe how poor oral hygiene is linked to higher risk of developing dementia
In a photograph of my mother on my desk, she is smiling broadly, an even, white-toothed smile. It was taken 18 months before she died. Her dementia was evident everywhere in our lives by then – but not in that picture: from the photo you’d never guess. She looks self-possessed and whole. In fact, she looks like a commercial for geriatric dental care with that wide, white smile.
What can music do for dementia patients? A lot – experts explain
A kind reader wrote to express gratitude for the Post’s series of articles on dementia. He was 85 years young and still active, although only going to the gym “four times a week now”, which made me smile. In his spare time, he listens to music CDs.
How protecting your heart health may prevent dementia
What is good for your heart is good for your brain.
This is the message many doctors share. They include Dr Albert Hofman, chair of the department of epidemiology at the Harvard T.H. Chan School of Public Health at Harvard University, in the US state of Massachusetts.
We may finally know how cognitive reserve protects against Alzheimer's
We have known for almost three decades that some peoples’ brains can function normally even when riddled with the plaques and other damage associated with dementia, due to an enigmatic capacity called cognitive reserve. Yet despite growing evidence of its importance, it has been challenging to pin down how this quality operates in the brain.
‘I felt guilt and fear that I had caused my daughter’s OCD’
The diagnosis felt like a gut-punch. Had I done something as a mother to cause this? Had I failed to do something to stop it happening? I felt both guilt and fear – guilt because, as parents, we shape our children. If my daughter struggled with mental illness, had I damaged her in her early years?
My mother has dementia – these are the lifestyle changes I've made to avoid the same fate
People often say, “It’s not your mother, it’s her dementia.” An unhelpful observation.
I know: I know that when my mother is unkind or impossibly difficult it’s because her empathy and characteristic sweetness are being eaten away by Alzheimer’s. Understanding that the fundamental changes in her are because of disease do not make them easier to live with.
It's time for us all to talk about the impact of dementia
I never thought about dementia until I had to, until my mother clearly and obviously presented with symptoms a few years ago. Symptoms we didn’t ignore exactly, but which we paid careless heed of. Until, that is, she asked me one day and out of the blue: “Tell me, when did we first meet?”
Decoding Dementia (9): Hearing loss dramatically raises the risk of dementia, why are people in midlife doing nothing to prevent it?
Hearing loss has been linked to a higher risk of dementia and cognitive decline, but is preventable with hearing aids, say experts, who recommend testing for a problem which may otherwise go unnoticed
We’re Only Human: How Some Common Drugs Can Increase the Risk of Dementia
ACB stands for Anticholinergic Cognitive Burden. I only thought to explore anticholinergic drugs, what they are, their effects, and which ones my mother may be—and may have been—on, when a doctor remarked on the dementia risk of sleeping tablets: “Many sleep aids are anticholinergic,” he told me, “that means they disrupt a neurotransmitter in our brain called acetylcholine, which is essential for memory.”
Dementia Diary: ‘Have you got your mum a toy cat yet?’ I was once appalled by this question Dementia Diary:
An acquaintance asked, ‘Have you got her a toy cat yet?’
Reading my expression as one of incomprehension, she elaborated: “You know, a teddy-bear cat, something she can pet?”
A year ago my understanding of the raw end of dementia was less well developed than it is now. I was still straddling an innocent’s position of denial and disbelief. So the look on my face that day wasn’t just because I didn’t grasp the question.
It was because I was appalled by it.
Decoding Dementia (6): ‘Like a light switch’: how sundowning syndrome affects dementia sufferers
It happens at roughly the same time of day: sundowning. But this is more than the slip of day to dusk. In the case of dementia, “sundowning” is the significant personality change that can beset sufferers towards the end of the day.
Decoding Dementia (5): 6 dementia fighting tips from experts on brain health
Before my mother presented with Alzheimer’s, I didn’t give the disease much thought. If I forgot something, I’d roll my eyes, laugh, and ask, “What am I like?” Or excuse myself as having had a senior moment. And then I’d forget about that, too.
Now when I forget something – anything – I’m seized by fear. You don’t think about dementia until you have to. And then it’s almost all you think about. I’m terrified I might one day suffer with what my mother suffers today.